The Whole Story

since 9 October 2000

Monday, 9 October

1 - 8 October, Week in Review: Mette began the week feeling sick. No, not from PSC. She was sniffling, and coughing, and feeling generally "poorly". She was home from work Monday, Tuesday and Wednesday with the plain old "cold/flu/crud". Thursday she was back at it with a vengeance and Friday she went in at 1430 for a "night shift" and wound up working straight until four in the morning. Saturday morning she came home and laid around all day (no surprise there). But, Sunday was just another work day around the house. She almost finished painting the wood shed, stacked some more fire wood and took a whip to me until I did everything she told me to do.


Saturday, 18 November (Posted 0915)

9 October - 17 November Review:

I hardly know where to start. The situation was looking so good, she was getting more and more strength, returning to her old ways, etc and then...

I didn't keep track because it was just one thing after another. She had the flu and missed several days work. Then she had this horrible back pain (still does) and missed some work. And then she had a bacterial cholangitis attack--that is where the reduced flow of bile out of the liver has allowed the bile to "hang around" long enough that it causes an infection. The infection, of course, makes one have a fever and feel generally lousy. Most folks have a LOT more pain than Mette did with her first bacterial cholangitis attack--for that, we are grateful. And, now that Mette has had one (its just something we have to expect to happen, over and over) we know what to look for. So, from now on, at the first rise in fever that has that special kinda pain in the liver area--we take Miss Mette to the hospital and they hook her up to massive quantities of antibiotics to drip into her arm. And in a few days the episode will be over.

Which was the case a couple of weeks ago. But then, a few days later the back pain was so awful she went back into the hospital...and, then a few days later started having jaundice (eyes and skin yellowed). A day or two of that at the Horsens Hospital and they kicked her back to the Århus Kommunehospital and the care of Dr. Rokkjær.

Which is where we are now. I'm typing this in the Patient Hotel. Thursday Mette had a percutaneous transhepatic cholangiogram (PTC) which is where they punch a hole in the abdominal wall, through the skin of course, and snake around inside with a catheter (guided by an untrasound) until they get into the correct spot inside the liver where they then push in a contrast solution and then take x-rays of the structure of the liver. Which, showed that the right half of Mette's liver appeared to be functioning normally, but the left half had been blocked and backed up. The exact cause for the blockage was not found and a pathway for next weeks procedures was left in place.

Right now she has lost almost all her yellow color and feels a bit better than last week--though she now has a drain tube following her around. Next week they will do a CT scan and then, depending on what they learn there will install a more permanent drain from the bad side of the liver to the gut, or they might go in with a balloon and blow it up to open up the now restricted gall duct, so it drains properly. Or, maybe they do both--time will tell.

So, I kept waiting for good news to put on this page and I guess I just got tired of waiting.


Tuesday, 21 November (Posted 0815 UPDATED 1325 and 1730)


Wednesday, 22 November (Posted 1415 UPDATED 2130)


Thursday, 23 November (Posted 1945)


Friday, 24 November (Posted 2200)

I talked to her on the phone and learned:
Monday, 27 November (Posted 0810 UPDATED 1910)

I talked with Mette on the phone a couple of times yesterday:

And, I've talked with Mette and her mom a couple of times today:


Wednesday, 29 November (Posted 1330)

I drove back up yesterday, and walked into Mette's room about 1600:

She asked me to be in her room at 0800 this morning (Wednesday) but I overslept--the Patient Hotel is a good place to sleep (or eat)--so I arrived at 0830:


Wednesday, 29 November (Posted 1330--but, this contains info through Sunday 3 Dec..)

After the mid-day nap on Wednesday:

Thursday, 30 November: I spent last night with Birgitte and Henrik (tusin tak) in Beder (about 15 minutes from the hospital--its an hour to drive home or 250 kroner to stay in the Patient Hotel, and not nearly as cosy) and:

Friday, 1 December (Happy Birthday to David): I spent another night with Birgitte and Henrik (tusin tak igen). Henrik and David have the same birthday and I was invited to Henrik's party tonight--tusin tak mange gang!

Saturday, 2 December:

Sunday, 3 December:


Monday - Tuesday, 4 - 5 December (Posted 2045 Tuesday)

I'm still at home with my cold, so I don't have constant access to information to pass along. But:


Wednesday, 6 December (Posted 2200)

I'm still at home with my cold but I'll visit Mette tomorrow (more on that later)


Thursday, 7 December (Posted 2100)

I met Dr. Rokkjær on the ward while Mette was at the other hospital, and we talked:

Now, that was today's early news--let me share some old news, some I've had for weeks but not shared in this venue because there were family members who had not been told (or had been told but didn't accept or try to understand the implications), and I didn't want them learning it second hand "on the Internet":


Friday - Monday, 8 - 11 December (Posted 1300)

Last Thursday I visited with Mette (after discussing my LACK of symptoms of a cold with her surgeon) and about seven at night my nose began running again, and I returned home. Where I remain, offering pitiful little support or help from here. All the below was learned via a short phone call each day to Mette and from talking with her mom and others who have visited:


Tuesday 12 December (Posted 2000)


Wednesday 13 December (Posted 2200)

I'm still home, not so sick today but afraid I'm still contagious. Learned via phone:


Thursday 14 December (Posted 2030)

Today, marks four weeks at the Århus Kommunehospital, a place full of people we love, respect and owe a great deal of gratitude

I'm still home. I think I'm still contagious (dripping nose etc)..hope to see her Saturday. Learned via phone:


History's longest flu/cold persists . . . Learned via phone on Friday:

Saturday:

Sunday:


Monday, 18 December (Posted 0900 Tuesday)

I'm back staying with friends about 15 minutes from the hospital


Tuesday, 19 December (Posted 2200)

I'm staying with friends (Birgitte and Henrik) about 15 minutes from the hospital


Wednesday, 20 December (Posted 0900 Thursday)

I'm staying with friends (Birgitte and Henrik) about 15 minutes from the hospital


Thursday, 21 December (Posted 0600 Friday)

Still staying with friends (Birgitte and Henrik) about 15 minutes from the hospital, on this the shortest day of the year..


Friday, 22 December (Posted 0700 Saturday)

Still staying with friends (Birgitte and Henrik) about 15 minutes from the hospital


Saturday, 23 December (Posted 2100)

I have a room at the patient hotel...but, the nurse said I can stay in Mette's room


Christmas Eve--Sunday, 24 December (Posted 2030)
UPDATED Christmas Day, 25 Dec (posted 1300 and 2130)

I'm staying the night in Mette's room, as is Mette's mom--you might say Mette has all the love, support and attention she needs (maybe too much, if that is possible)

Noon Christmas Day, update:

Late Christmas Day, update:


Tuesday - Wednesday, 26 - 27 December 2000 (Posted 1530 Wednesday)

I'm staying the night in Mette's room, as is Mette's mom--but she is getting better and I don't think that is going to continue much longer


Thursday 28 December 2000 (Posted 1630)

I'm staying the night in Mette's room, as is Mette's mom--but she is getting better and I don't think that is going to continue much longer


Friday - Saturday, 29 - 30 December 2000 (Posted 1700 Saturday)

Considering a visit or phone call to Mette? See the information about that on the Contact Info page.

I'm staying the night in Mette's room. Mette's mom drove home Friday evening. She, Kaj and the dogs will celebrate the millennium change together--Kaj's house is the most distant from folks likely to shoot off tons of noisy fireworks--Molly and Susse are VERY frightened by the lights and sounds in the sky. Both will be treated to a little sedative in their New Year's Eve cocktail.

Friday:

Saturday

Sunday - 31 December 2000 (Posted 1700)
Happy Birthday to Janelta (my sister in Arkansas) and Nils Jørgen Hiden (our dentist and friend in Aarup)

Considering a visit or phone call to Mette? See the information about that on the Contact Info page.

I'm staying the night in Mette's room. Molly is with Inger and Kaj--Kaj's house is the most distant from folks likely to shoot off tons of noisy fireworks--Molly and Sussi (Inger's little dog) are VERY frightened by the lights and sounds in the sky. Both will be treated to a little sedative in their New Year's Eve cocktail.

We hope that 2001 is the best year ever for all our friends--furthermore, we hope that it is just the first in a long string of better and better years..


[Mette's story, from the beginning to 4 July 2000]
[Mette's story, 5 July to 8 October 2000]
[Mette's story from 1 January 2001]
[Index] [Memorial] [Blood Test] [Summary] [Links] [Contact Info]
[Tersløse.com]
©Copyright 2000, DenverD. All rights reserved.